{"product_id":"9780786730674","title":"Shelter From The Storm: Caring For A Child With A Life-threatening Condition","description":"critically ill and unlikely to survive. A recent Harvard University study on pediatric end-of-life care has shown that the medical community is failing such children and their families. Indeed, in their effort to be ever-hopeful and cure-oriented in the face of a child's terminal illness, they neglect to advise parents on the basics of emotional support for all family members, pediatric pain medication, and the need for making plans and worst-case preparations.Based on the National Advanced Illness Coordinated Care program and the stories and advice gleaned from co-author Joanne Hilden's years of work as a pediatric oncologist, Shelter from the Storm fills this advice-and-caregiving void. A compassionate road map to what the family may have to face, what they may be asked to decide, and how they might want to involve their child in the decision-making, Shelter from the Storm will help parents and caregivers make informed, loving, and protective choices on behalf of their children in the most trying of times.","brand":"Da Capo Press","offers":[{"title":"Default Title","offer_id":47067314716912,"sku":"9780786730674","price":10.99,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0737\/7593\/9824\/files\/9780786730674_p0.jpg?v=1763663720","url":"https:\/\/shop-qa.barnesandnoble.com\/products\/9780786730674","provider":"Barnes \u0026 Noble (DEV)","version":"1.0","type":"link"}