{"product_id":"9781576878613","title":"An Ordinary Day: Kids with Rare Genetic Conditions","description":"\u003cp\u003e\u003ci\u003eAn Ordinary Day\u003c\/i\u003e is a documentation of the personal lives of courageous kids who have rare genetic conditions and their families who love and support them at all cost. 1 in 10 Americans are living with a rare genetic condition. The conditions that rule the lives of these families are often overlooked by society, but for millions of people it is a matter of foremost priority. This book sheds an important and compassionate light on these existences.\u003c\/p\u003e\u003cp\u003eLife often presents challenges that seem insurmountable. Children are not exempt from this, but often through their innocence and will we can find inspiration and hope. \u003ci\u003eAn Ordinary Day\u003c\/i\u003e displays unforgettable photographs set against intimate conversations, documenting the lives of 27 children living with rare genetic conditions.\u003c\/p\u003e\u003cp\u003eReaders will fall in love with these children, share in their struggles and victories, and celebrate the life-affirming spirit captured in every image. The book invites us to connect with kids like Ethan, a nonverbal 7-year-old who learns to sign to communicate his needs, 5-year-old Madison who has taken her first steps after years of crawling, and Jonathan, a 9-year-old boy who finally learns to eat with a spoon after many failed trials. Tasks often taken for granted, are profound triumphs for children afflicted with rare genetic conditions.\u003c\/p\u003e\u003cp\u003eThe every day moments captured in\u003ci\u003e An Ordinary Day\u003c\/i\u003e inspire awareness and empathy, while highlighting the commonalities between families with rare genetic conditions, and more deeply between us all. Poignant and revelatory, \u003ci\u003eAn Ordinary Day\u003c\/i\u003e illuminates what it means to be a family.\u003c\/p\u003e","brand":"powerHouse Books","offers":[{"title":"Default Title","offer_id":47054625603824,"sku":"9781576878613","price":45.0,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0737\/7593\/9824\/files\/9781576878613_p0.jpg?v=1763793855","url":"https:\/\/shop-qa.barnesandnoble.com\/products\/9781576878613","provider":"Barnes \u0026 Noble (DEV)","version":"1.0","type":"link"}