{"product_id":"9781937458614","title":"Rubber Band Girl: A Mother's Memoir","description":"\u003cp\u003eMarfan Syndrome, or “Rubber Band Disease,” as it is commonly called,  has taken the lives of too many, too soon. A disease that attacks the  ligaments of the body, it is associated with heart and vision problems,  extreme flexibility of the joints, and, its most noticeable feature,  excessive height.\u003c\/p\u003e\u003cp\u003eIn this inspiring memoir, Jennifer Nielson recounts her journey as  the mother of Hadley, a beautiful young girl with Marfan Syndrome.  Together, they climb the mountains of life-threatening health problems  and endless doctor visits. Together, they travel through the deep  valleys of sorrow and loss. Together, they successfully manage Marfan’s—and forge an  unbreakable bond in the process.\u003c\/p\u003e\u003cp\u003e\u003ci\u003eRubber Band Girl\u003c\/i\u003e is a heartwarming story of a mother and daughter who  never give up on life or on each other. Because of its honesty,  positive tone, and happy ending, it will find an eager audience with any  parent who has struggled with the health challenges of a child.\u003c\/p\u003e\u003cp\u003eJennifer Nielson graduated Summa Cum Laude from Arizona State  University with a degree in elementary education. A self-proclaimed “recovering perfectionist,” she  has learned to fuse her creativity and energy to raise a family, teach  music, and produce a successful home-based interior design business. She  lives in Gilbert, Arizona, with her husband, Talan, and their five  children.\u003c\/p\u003e","brand":"Sourced Media","offers":[{"title":"Default Title","offer_id":47151708635376,"sku":"9781937458614","price":9.99,"currency_code":"USD","in_stock":true}],"thumbnail_url":"\/\/cdn.shopify.com\/s\/files\/1\/0737\/7593\/9824\/files\/9781937458614_p0.jpg?v=1763660860","url":"https:\/\/shop-qa.barnesandnoble.com\/products\/9781937458614","provider":"Barnes \u0026 Noble (DEV)","version":"1.0","type":"link"}