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Intellectual and Developmental Disabilities (IDD) Branch
Intellectual and Developmental Disabilities (IDD) Branch
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The Intellectual and Developmental Disabilities (IDD) Branch, formerly the Mental Retardation
and Developmental Disabilities Branch, within the Center for Developmental Biology and
Perinatal Medicine of the Eunice Kennedy Shriver National Institute of Child Health and Human
Development (NICHD), has a longstanding history of providing support for a diverse portfolio of
research projects, training programs, and research centers dedicated to promoting the well-being
of individuals with IDD. When the Institute was created at the National Institutes of Health
(NIH) in 1962 at the request of then-President John F. Kennedy and with the support of congress,
one of its primary charges was to encourage investigations in human development throughout the
lifespan, with an emphasis on understanding developmental disabilities, including intellectual
disabilities (historically referred to as mental retardation). The mission of the IDD Branch is to:
• Develop and support research and research training programs in IDD;
• Administer a program of support for centers for research in IDD;
• Coordinate with university-affiliated programs for IDD with respect to integration of
research, training, and service activities; and
• Partner with other federal agencies, organizations, and advocacy groups to advance efforts
toward the prevention, diagnosis, treatment, and management of IDD that will improve the
quality-of-life for these individuals and their families.
Since its last report to the National Advisory Child Health and Human Development (NACHHD)
Council, the Branch has continued its mission through a variety of mechanisms, grants, and
contracts. The Branch has also added breadth to its portfolio by expanding traditional efforts to
address quality-of-life issues for individuals with IDD, while increasing multidisciplinary and
translational research to facilitate the movement of basic research from the bench to the clinic
and beyond. The Branch’s expanded newborn screening program and the growth of certain
cooperative research centers reflect such efforts.
This report highlights advances from Branch-sponsored research, emphasizes major Branch
initiatives from the past four years, and outlines areas of future expansion in the field of IDD
research.
and Developmental Disabilities Branch, within the Center for Developmental Biology and
Perinatal Medicine of the Eunice Kennedy Shriver National Institute of Child Health and Human
Development (NICHD), has a longstanding history of providing support for a diverse portfolio of
research projects, training programs, and research centers dedicated to promoting the well-being
of individuals with IDD. When the Institute was created at the National Institutes of Health
(NIH) in 1962 at the request of then-President John F. Kennedy and with the support of congress,
one of its primary charges was to encourage investigations in human development throughout the
lifespan, with an emphasis on understanding developmental disabilities, including intellectual
disabilities (historically referred to as mental retardation). The mission of the IDD Branch is to:
• Develop and support research and research training programs in IDD;
• Administer a program of support for centers for research in IDD;
• Coordinate with university-affiliated programs for IDD with respect to integration of
research, training, and service activities; and
• Partner with other federal agencies, organizations, and advocacy groups to advance efforts
toward the prevention, diagnosis, treatment, and management of IDD that will improve the
quality-of-life for these individuals and their families.
Since its last report to the National Advisory Child Health and Human Development (NACHHD)
Council, the Branch has continued its mission through a variety of mechanisms, grants, and
contracts. The Branch has also added breadth to its portfolio by expanding traditional efforts to
address quality-of-life issues for individuals with IDD, while increasing multidisciplinary and
translational research to facilitate the movement of basic research from the bench to the clinic
and beyond. The Branch’s expanded newborn screening program and the growth of certain
cooperative research centers reflect such efforts.
This report highlights advances from Branch-sponsored research, emphasizes major Branch
initiatives from the past four years, and outlines areas of future expansion in the field of IDD
research.
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