Living With MEN Type-1

This book details the experiences of a mother and her two daughters
who have inherited a disease called Multiple Endocrine Neoplasia or MEN
Type-1. The gene of this disease is believed to be carried by males.
MEN Type-1 affects many organs in the body such as the thyroids,
pituitary gland, liver, gallbladder, spleen, pancreas, and the kidneys, but is
difficult to diagnose. As a result, the family received many terrible diagnoses
before the cause of their pain was identified.
Over activity of the endocrine system is one symptom considered when
diagnosing MEN Type-1. All three women showed this symptom by the
age of 30, and received some frustrating explanations for their problems.
At times they were accused of exaggerating their pains to gain personal
attention.
There were times when seeking care, the threat of death knocked at
their door. Many physicians have told them, "I've read about MEN Type-1,
but never treated a patient with it." Nevertheless, all have shocked many of
their physicians and surgeons with their progress.
There is not a cure for this rare disease, but with the right treatments
and medications people with MEN Type-1 can live for a long time.